ASXL Family Conference

Meet your people at the ASXL Family Conference! The ARRE Foundation’s ASXL Family Conference is an educational and social program for families and caregivers of individuals with ASXL-related disorders. The ASXL Family Conference includes educational sessions with medical professionals and parents, discussion groups, social events, and critical opportunities to participate in research studies.

See you in 2026! The next ASXL Family Conference will be in June or July 2026 at a location to be announced in the United States. Follow us on Facebook, Instagram, and sign up for our emails for updates!

View the 2024 ASXL Family Conference program (PDF) for reference.

Recordings from the 2024 ASXL Family Conference

Recordings of the educational sessions at the 2024 ASXL Family Conference can be found in the ASXL Resource Library.

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Thank you to our event sponsors!

  • Lauren and Jimmy Adams

    Platinum Sponsor ($10,000)

  • Leo's Lighthouse

    Gold Sponsor ($5,000)

  • Jamie and Daniel Ordower

    Gold Sponsor ($5,000)

  • Ultragenyx

    Partner ($500)

  • 4imprint One by One program

    Partner ($500)

  • Costco

    In-kind support