ASXL Family Conference

Save the date: June 2026

The ASXL Family Conference, which includes educational programming and networking for families, is held every other year. The 2026 ASXL Family Conference will be in late June 2026 in the United States at a location to be announced. The ASXL Research Symposium for research professionals and clinicians is held annually.

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Why you should attend the 2026 ASXL Family Conference

Meet your people at the ASXL Family Conference! The ARRE Foundation’s ASXL Family Conference is an educational and social program for families and caregivers of individuals with ASXL-related disorders. The ASXL Family Conference includes educational sessions with medical professionals and parents, discussion groups, social events, and critical opportunities to participate in research studies.

View the 2024 ASXL Family Conference program (PDF) for reference.

Recordings from the 2024 ASXL Family Conference

Recordings of the educational sessions at the 2024 ASXL Family Conference can be found in the ASXL Resource Library.

“The experience was amazing. We were so grateful that we were able to attend.”

— 2022 ASXL Family Conference attendee

A young girl pushing a stroller looks at the camera. She has a bandage on her arm from a research blood draw.
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Thank you to our event sponsors!

  • Lauren and Jimmy Adams

    Platinum Sponsor ($10,000)

  • Leo's Lighthouse

    Gold Sponsor ($5,000)

  • Jamie and Daniel Ordower

    Gold Sponsor ($5,000)

  • Ultragenyx

    Partner ($500)

  • 4imprint One by One program

    Partner ($500)

  • Costco

    In-kind support