2024 ASXL Research Symposium and Family Conference

45 families living with ASXL-related disorders and 54 doctors and researchers came together at the 2024 ASXL Research Symposium and Family Conference at Kennedy Krieger Institute in Baltimore, Maryland from July 18-21, 2024. Together, the ASXL community shared research and experiences, and participated in over 120 research visits and 15 focus groups to help us learn more about ASXL-related disorders. Hope for the future with this rare disorders is bright through connection, collaboration, and research! Thank you to everyone who contributed to making the 2024 ASXL Research Symposium and Family Conference a success!

20240719_DSC05669.ARW_171613-0400_32182_.jpg
20240719_DSC05756.ARW_180926-0400_32269_.jpg
20240720_DSC05803.ARW_095752-0400_32315_.jpg
20240720_DSC05861.ARW_110415-0400_32373_.jpg
20240720_DSC05881.ARW_111925-0400_32393_.jpg
20240720_DSC05883.ARW_112025-0400_32395_.jpg
20240720_DSC05905.ARW_122009-0400_32417_.jpg

“The experience was amazing. We were so grateful that we were able to attend.”

— 2022 ASXL Family Conference attendee

A young girl pushing a stroller looks at the camera. She has a bandage on her arm from a research blood draw.

Thank you to our event sponsors!

  • Lauren and Jimmy Adams

    Platinum Sponsor ($10,000)

  • Leo's Lighthouse

    Gold Sponsor ($5,000)

  • Jamie and Daniel Ordower

    Gold Sponsor ($5,000)

  • Ultragenyx

    Partner ($500)

  • 4imprint One by One program

    Partner ($500)

  • Costco

    In-kind support